Pediatric Liver Transplant: Compassionate Care for Children

Pediatric Liver Transplant: Compassionate Care for Children


The news of hearing that your child may end
up needing a liver transplant is probably some of the most shocking news a parent can
hear. I think that’s one of the most important parts
of our mission is to meet parents in that early stages of finding out that this might
be a possibility so that we can get to know them and get to know their child and give
them the most personalized, in depth advice that we can. My role is really to coordinate care, and
then two, to make sure that the family knows that I’m an ally, and really, that I’m now
part of their family in many ways. It’s not just a patient that goes through
a transplant, it’s the whole family. So how do we best help a parent think through
how do you work and do this? How do you support your other children and
do this? How do you arrange housing? How do you manage all of this? It’s a small community feel, and we’re able
to offer this specialized care that normally you’d have to go to a much larger city to
receive. We have school here, and we’re able to keep
the kid’s life as normal as possible. And then we also can collaborate outside of
the office if they need any kind of special assistance with other services or programs,
such as psychiatry or teen health. One of the most satisfying things about my
job is calling a family and saying, “We have found an organ, and we think it’s your turn.” I think the power of that moment is indescribable. And it just feels good. One of the things of the benefit of being
in this job a long time is I’ve witnessed those recoveries. And I’ve learned from every single patient,
family. So to see a child that I met who’s in college
now, I’ve witnessed it so I can speak to how this road looks.

Leave a Reply

Your email address will not be published. Required fields are marked *